Protocols

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Browsing Protocols by Author "Ngutwa, Nellie"

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    Experiences of caregivers of children living with sickle cell disease in Blantyre, Malawi
    (Kamuzu University of Health Sciences, 2020-11-11) Ngutwa, Nellie
    Type of study This is a descriptive qualitative study that will explore experiences of caregivers of children living with sickle cell disease. Problem statement In Malawi it has been reported that confirmed cases of Sickle cell disease in children have reported increased number of admissions, pain episodes and anaemia (Heimlich et al., 2016).To improve outcomes, early therapeutic interventions are recommended, however trends have shown poor attendance of children at the QECH sickle cell clinic. There is need to explore issues surrounding the poor turnover. These can be solicited where the experiences of the caregivers are known. There are no published studies on experiences of caregivers living with sickle cell children in Malawi. As such it is important to explore experiences of these caregivers. Study objective Broad objective To explore experiences of caregivers of children living with sickle cell disease. Specific objective 5. To describe the emotional impact of learning SCD diagnosis in their children 6. To describe the caregiver’s role in the care of their Sickle cell Children 7. To identify challenges experienced and coping strategies used in the care of their Sickle Cell children 8. To identify the forms of support caregivers, receive when caring for their Sickle Cell children Methodology The study will be conducted in Blantyre, Malawi under QECH 15 participants who are caregivers to children with sickle cell will be included. The study will utilize qualitative data collection and analysis method Expected findings The study is expected to report experiences of caregivers living with sickle cell children specifically challenges relating to their psychosocial aspect of life. Dissemination The results will be disseminated through meetings at institutions departmental level and Continuous Professional Development session. Written reports will be sent to the Hospital Director, the unit Matron, head of Sickle cell clinic and College of Medicine Research Committee. A manuscript will be submitted to a peer reviewed journal for publication. The results will also be shared at conferences both national and international.